As a parent, we only want what is best for our children and we quickly learn that we are their only voice. Brandon was born at the end of October and at our 2 month check-up with the doctor, I expressed concerns that I had. I had noticed he was tight on his right side (his arm and leg were more stiff when I changed him), right tilt of his neck and a very visible flat spot on the back of his head. I asked the doctor what she thought and she just nodded and said “well maybe..” I asked her if it warranted a call to Early Intervention and she said it was up to me. I was really looking for someone to tell me what to do since you are just figuring everything out for the first time as a new parent. But then I remembered that I am Brandon’s only voice. I placed a call that afternoon to Early Intervention of Montgomery County and 2 weeks later had an evaluation in my home for Brandon. It was determined from the evaluation that yes, Brandon had Torticollis and we had Physical Therapy, 1x/week.
Chris Lewis, our Physical Therapist has been monumental in Brandon’s development. Brandon had a tilt to his right side and his Torticollis was also related to his Reflux. She provided suggestions and strategies on a weekly basis and my husband and I were like sponges! We wanted to do EVERYTHING that she recommended. There was one session in particular that she showed me a football hold that we could show my husband to make him feel more involved since he was not there for the sessions. He tried the position that night and was so excited that he was practicing with Brandon. I was involved for the first 2 months for his sessions because I was still home on Maternity Leave. Chris also took a picture of the position so that I could use it to show him and model. We also received our session notes electronically and it is great because I am able to send them to other family members and my husband to keep them updated on Brandon’s progress! A few weeks later, she discussed ways of making Brandon more independent while I did activities around the home. We had a fancy highchair still in the box and Chris recommended a feeding chair that was more appropriate and we could use it earlier b/c it would fit him better. HE LOVED THE CHAIR and being able to play with his toys! I loved it because my arms and hands were free to prepare dinner!!! Chris learns about your routine as a family and builds strategies around what you do during the day. Now that I am back to work, I send Chris updates about Brandon before his session so she knows what we have been working on and all the new things he is doing, trying and learning. There is always ongoing communication which I value as a mommy!!!
Most recently, we had our quarterly review and Brandon is doing EXCELLENT. There is no visible tilt and the flat spot on his head is unnoticeable!! Our service frequency has been decreased to 1x/month from 1x/week already!!! Early Intervention, Kencrest and Chris Lewis are the key reasons why Brandon made such a huge leap in development. I just think that if I didn’t make that call in January, we would probably just be starting the process after his 6 month checkup and the diagnosis of Torticollis could have prolonged his development in rolling, sitting and other future milestones. He is also thoroughly enjoying sitting like a big boy in the store carts now thanks to the green light from Chris. I was telling her how much he loves to see what is happening when we are shopping and she recommended that we try letting him sit in the cart. We tried it that night and as you can see from the picture, he was a big FAN!!! Thank you for all you do and the positive impact you have on so many young lives!!! Continue reading